The importance of acquiring knowledge on glioblastoma
In several articles of this blog we reiterated the importance of acquiring knowledge on glioblastoma although this is undoubtedly difficult considering the mood in which we find ourselves when we receive a diagnosis like this or when our loved one receives it.
If we really cannot do it we have to ask someone we trust to do it for us.
The first point to start with is certainly the Musella foundation list of 10 things to know if you are diagnosed with brain cancer.
The second is certainly to read the Musella foundation’s guide on new brain tumor diagnoses. The guide can be read easily even if it has important technical contents and is currently contextualized in the reality of the US which is in some ways different from the Italian and European reality.
Recently I was invited to the CRO in Aviano and they suggested to me the guides called Libretti from AIMaC, the Italian Association of Cancer Patients, Relatives and Friends. The content of these booklets is very simple, probably less detailed than what you can find in the guide of the Musella foundation but it is still an excellent path to acquire knowledge and they are contextualised in the reality of our country. Of these booklets I would advise you to certainly read the guide Tumori Cerebrali and then possibly to deepen some specific aspects with the following guides or others that you will find on the AiMAC website and which will attract your attention:
- I diritti del malato di cancro,
- I trattamenti non convenzionali,
- La nutrizione del malato oncologico,
- Gli studi clinici sul cancro,
- Le terapie immuno-oncologiche,
- La medicina oncologica personalizzata.
If you want to learn more by going into the reading of some scientific article, I found a lot of information on the BrainLife.org site co-founded by Elisabetta Mancini Camporeale, who has lived for several years with a glioblastoma multiforme.
The more we know, the greater our weapons for fighting glioblastoma multiforme. Enjoy the reading!